“Out” is a relative term, but almost anything is out compared to my life recently – inside the car, and inside the house. So when I got a visit from Joyce and Diane on such a beautiful day as yesterday (and Lynne was already here), I decided to try my new O2 conserver regulator that I’d gotten on Thursday. Naturally, we all had our cameras, and you can imagine that it was worse than a wedding, where everyone wants the same shot on their own camera – poor Frankie was clicking a mile a minute! And we even managed to get him in a few (although, sad to say, not on mine – oh well, it was a girls’ day out, after all….)
First of all, though, here’s two shots of a beautiful bouquet that was sent to us by one of the other Traveling Hoodies, klink (now I realize I should have taken pictures of Ellen’s roses and Catherine’s chrysanthemums, but I just can’t get everything done it seems…).
When we headed outside after getting the new O2 conserver regulator correctly set up ( I tried it a few days ago and promptly let ALL the air out of the tank), we made a stop at the big rock near the birdfeeders. Lynne looks great in this shot, but I look like the Frito Bandito guy (with a cockeyed mustache). I really should have used the black magic marker to emphasize the mustache, but probably you all have good enough imaginations to see it the way it is here.
Then I jump back a few decades, and all of a sudden I’m Casper the Friendly ghost (but at least I’m friendly).
We all managed to walk (very slowly) down to the river. Joyce is the only one who is shorter than I, so I had my arm over her shoulder on one side, and Diane’s arm on the other. To say I was being well looked out for is an understatement. When we got down to the river, I was glad to see that the Arcadian fireplace from last summer was still in place (great job, Amy and Weezie). You can see the little carry case that came with the O2 regulator in the background, leaning against the fireplace. Also in this picture you’ll see my one chance of appearing taller than Lynne (I was on a hill).
We all took our time walking back up the hill toward the house, and then took a few more photos. This is a pretty nice shot of the three of us – me flanked by two gorgeous red-bedecked gals
And, just to prove that she always means what she says, here is Lynne, having wrestled me to the ground, giving me noogies in a giant headlock – BUT – guess who’s still smiling and smelling like a rose? Ho ho ho – Why, the PQ, of course!
We all had a great time being together again yesterday. We (including Frank) enjoyed a yummy quiche from a local coffeehouse/bakery, the Village Cup, and those guys all had some fine wine with their meal as well. We’ll have another mini reunion when Lynne flies back up here in June.
I just realized that I can’t just write about all the socializing that’s been going on – I need to do a little medical update as well so……
When my neighbor drove me in to the ER on Friday, things were happening kind of fast. My breathing was becoming labored quickly, and in that mode it gets a little scarey and panicky. I’m so grateful that my VNA nurse, Kelley, was here to give me guidance and recommend that I go in to get seen. She called her supervisor, who then called ahead with all my info to the ER so that my arrival and intake would be quick and smooth (which it was). I’m also so very grateful to my neighbor, Deanna, for driving me and staying with me the whole time. She was a really good advocate for me while I was in there, too, because if she thought something was taking too long, she’d go check it out.
They gave me a lung Xray (saw no extra fluid buildup, which was good), blood tests and a urinalysis ( I can now perform that one at the drop of a hat – or should I say pants? Ha ha ha!). No sign of infection – again good. So they wanted to increase my Prednisone dose back up to the 60 mg. level. That was the opposite of what I’ve been doing for Dr. D, so I wanted them to get ahold of him to make sure we were all in agreement on the course of action to take. They did get him, and they agreed on the level of Prednisone I should be on for the next few days. This morning (Monday) I called his office to find out how he wants me to start tapering off from the higher dose this time. Prednisone does help with tissue inflammation in the lungs (but not with tumor shrinkage), so anything that can be done to get me more room in my lungs for O2 is good. It thus helps with energy – but all of these problems I’ve recently had have taken a toll on me, which will take a while to recuperate from. Luckily, Gina will be arriving this Saturday, and I know she will be a great help to me. I still am slated to have an appointment with Dr. D on March 31st so he can check me out. I just hope I don’t get in trouble again coming down from the Prednisone – maybe I’ll just have to stay at a certain level and then judge by a scan whether or not the chemo is doing something good. Breathing is job #1, after all….
I adjust my O2 level up or down, depending upon how I’m feeling. I’ve always been a little reluctant to increase it, thinking that somehow I’m “losing” by doing so – but I’m quickly getting over THAT goofy way of thinking. When I can breathe, the whole world is a different place…. Things will be sort of quiet this week – Lynne leaves tomorrow morning, and there doesn’t look like anything else is scheduled on the calendar – who knows – maybe I can even finish up my hooking project! So that’s all of my current medical update. And now to the Patch. ( Because Lynne wrote this post, she’s going to be the one to give the replies, and here she goes):
Joyce: What fun it was to spend some much over-due time with you and Diane yesterday….we couldn’t have planned better weather or a better lunch. Great quiche and vino……I’ll be returning (hopefully with a stronger back), at the beginning of the summer, so get ready for another wonderful time. Keep our beloved P.Q. in line (yes, I know that’s quite the task)……
Tico: How fun it was to see your response…..thanks my friend. The Loving Spoonful……wow…always enjoyed their music and I’m proud to say I remember all the words to that song and others…..am I old or what? How many Patch People reading this even know who the heck this band is I’m speaking of? Come on….own up!!!
Lee: Hello fellow Patch Person! Happy to report,my back is indeed better and seeing as though I’m flying home tomorrow morning, the ride will hopefully be better going South than coming up North…that was one sore flight. Thanks for the nice words re: my blogging “attempt”…it’s been fun….
Robyn (aka:Swoosh): Hey Robbie……we should get the Frank Man to write a blog now and then…..right….that ain’t gonna happen because he knows the Ponderosa Girl(A.K.A. Sweep) does the best ever job of keeping all of us connected. See you at the airport around noon…..XO more than my luggage….
Debbie: And well I remember you…….nice to “speak” with you on Tina’s blog. We are truly enjoying our visit, and thanks for commenting on my guest blog. I enjoyed being her “stand-in”….
Weeziie: Weezie…we saw three movies(all good ones) and I put a dent in not only her eggnog, but of course her JD…ummmmmm gooooood….thanks for your kind words about my writings. I truly enjoyed saying hello to all you Patch People…We’ll be staying close intouch through the P.Q’s wonderful blog. Til then……love you all….XOL.L.